Paul's Experience: Narcolepsy and diagnosis - an 8 year odyssey

What’s Inside?

Paul (pseudonym) is a life-science professional and consultant who struggled with fatigue and other debilitating symptoms for eight years before he was finally diagnosed with narcolepsy, a chronic neurological disorder that affects the brain's ability to control sleep-wake cycles.

This blog covers Paul's journey to diagnosis and is part of a series that Volv is working on to understand and share more about rare disease patient experiences:

• The main symptoms of narcolepsy
• Confounding illnesses 
• Misdiagnosis paths
• Real impact on the patient experience for Paul and his family